Day 26 of recovery

7/26/14

Day 26 of recovery

Yesterday turned out to be one of those really hard days, Alexa was in a lot of pain most of the day.  We tried to take her out to the store for a bit but she just couldn’t do it.  It turned out to be quite a boring day for us too, just sat around watching movies & being bored.  Today I got up fairly early & went down to get some laundry done.  That’s always an adventure since one of the dryers down stairs doesn’t work & I had to put one load down stairs & take the other one clear up to the 3^rd floor & we are on the 2^nd floor.  At least I got plenty of exercise, haha!!  We decided we needed to follow Dr. Chinikotla’s advice & get Alexa out & about today so we got all ready with all of her meds, insulin & paraphernalia & headed out.  BTW, I found out I was spelling Dr. C’s name wrong & this is the right way, I had the last “t” & the “l” switched around.  You think that’s bad, you should see his 1^st name!!  We decided we wanted to find the Saint Paul, Minnesota Temple which was about 20 min away.  We also wanted to find a Costco since my GPS had started messing up really bad & we needed to exchange it.  The temple is very pretty but very small.  There weren’t even any gardens or anything around it to walk thru like they usually have.  We will probably try to do a session & baptisms when Chelsea & Shayla come.  Oh, did I mention that Shayla is coming the 1^st week in Aug along with Chelsea?  We are lining up some fun things to do while they are here.  After seeing the temple we went to Costco & had no prob exchanging the GPS, that’s why I shop there.  We decided to eat lunch there & while we were eating we noticed that Alexa’s feeding tube wasn’t working……again!!!  Ty bought a bottle of coke & we headed out to the car to try to unclog it again.  He worked & worked on it & on the way home pulled over several times to work on it some more.  After we got home I called the transplant dr on call & told them what was happening.  I explained to her that we couldn’t afford to keep going into the ER every time it gets clogged up since we have a $100 ER deductible.  She felt really bad but said since it’s a weekend & Dr. C was in surgery for another 3 hrs, that’s the only way we could do it.  Ty was pretty determined not to have to have her admitted back into the hospital so he continued to work on it & was finally able to get it unclogged.  I think the “plumber” was coming out in him!  He said if he had his compressor & shop vac he could keep her unclogged, haha!!  Hopefully it will stay good for the night & all day tomorrow!!  I took a pic of Alexa’s morning meds, they are very colorful aren’t they?  We have to crush pills & soak them in water & get all of these ready every morn & night & it takes about ½ hr.  Tonight we ate with the Clements here at RMH.  Austin got out of the hospital yesterday & is doing really well.  He brought Risk over to our apt & the kids are playing that tonight.  We are so glad he is here.  It will be so good for these kids to have each other & keep their minds off their pain!!  Austin’s Mom, Ann, reminds me so much of Vickie Dawson & makes me miss her!!  We just need prayers that we can keep this darn feeding tube unclogged now & that Alexa can start eating on her own so we can be rid of it!