Day 19 of recovery

7/19/14

Day 19 of recovery 

We are still doing pretty well!  People were not exaggerating when they said it would be 1 good day & then a couple of bad ones.  We had a couple of bad nights where her pain was out of control again but last night seemed to be better.  If you ask Alexa about her nights she will tell you they are all horrible but with us sleeping here with her we can tell when things are truly horrible for her & when things are getting better.  Her pain meds were wearing off about an hr before she was due for the next dose, which was every 4 hrs, & that last hr was really difficult to get thru.  They changed her schedule so she would get pain meds every 3 hrs & readjusted the dosage & things finally started getting better yesterday.  I was pretty exhausted from the 2 nights before so Ty stayed the night with her last night & said she actually did pretty well.  We pray every day for the nurses & doctors to be inspired & know what changes need to be made & we feel so blessed that things are going so well.  We are still on schedule to be released from here on Mon.  Alexa is a bit apprehensive about it since she is still in so much pain but I believe we will have what we need to keep things under control ourselves.  It will be tough since we will have to set alarms to get up & check blood sugar & give meds regularly but we will get thru it.  We should be pretty used to it since we have been getting up with her every night for the past couple of yrs!  We have been researching & asking around about things we can do around here to keep Alexa distracted.  We are excited that Tyson will be coming on Tues & then Chelsea is planning on coming the 1^st part of Aug.  Alexa is beginning to try more foods by mouth, which the dr says is a really good thing.  They said that she can have whatever she wants but just to try a couple of bites & see how she feels to begin with.  Yesterday she ate a small thing of dippin dots & did fine with it.  Right now she just has to keep track of the carbs & correct with insulin but eventually as her islets start “waking up” more & more, we will be able to keep going down on her insulin!!  She also has to take pancreatic enzymes with every single thing that she eats & will need to do that for the rest of her life.  

 

This is the nurse Fataya that we had for about a week when things were really rough. She was fantastic & we really grew to love her! I forgot to have Alexa put her retainer in with her tooth so she looks like an oaky, haha!!