Day 17 of recovery

7/17/14

Day 17 of recovery

We are progressing very well now.  Pain is staying pretty well under control & Alexa is asking to go to the library to check out movies & asking to go outside.  That means she is getting bored.  Austin Clements has been moved up to the floor already & is doing really well.  He is a great kid & I think Tyson & Alexa will enjoy hanging out with him.  Also Caleb is staying at the RMH & is excited that Tyson is coming.  He had the surgery about 2 months ago I think.  We are so grateful for the RMH, is has really been nice to have a safe place to go.  Tonight Famous Dave’s catered the dinner & we ate way too much!  It was so good!!  Yesterday was a bit of a hard day.  At 5 AM I woke up hearing 3 different nurses or doctors in there working around Alexa.  I just laid there quietly watching & listening while they were doing something with her picc line.  They were working on it for about an hr.  At one point one of them ran out to get something & the other one got on his phone & called someone & told them he needed them to come to room 32 quickly.  I was freaking out a bit at that point wondering just what was going on.  We had just been to that class on how to care for the picc line the day before & she told us how crucial it was to do everything just right & warned us about the possibility of getting a clot in it.  I heard them talking about having to do TPA.  After everyone left except for the nurse I asked her what was going on & she told me that both lines were clogged & they were going to put TPA in there which is a medication that will dissolve the clot.  I got up & looked it up on the internet which was a mistake cuz it only made me worry more.  The site I was reading from was written in 2007 & was talking about how it could possibly cause death!  I was so worried that at 7:00 I decided to call Ty & woke him up.  I felt better after talking to him though.  They were able to get the clot out of one side after about an hr & the other one a while later.  Well, in the afternoon she had a prob with her feeding tube.  I wouldn’t close tight & everyone thought the only way to fix it was going to be to put a new tube into her belly.  The nurse ended up taping it & when they put anything into it they had to have Alexa hold it tight so it wouldn’t leak everywhere.  When Dr. C came today he fixed it for us by sticking something in it & it won’t ever come out.  I guess it works now though, haha!  He says she is doing fantastic & told us that she will probably be able to go to the RMH with us on Mon or Tues.  She is only hooked up to her feeding tube now, which she will go there with.  She actually tried to eat 2 bites of ice cream today & didn’t have a prob.  They said that would be the best thing to start with since it can melt & we can open the g tube & let it melt out if it upsets her stomach, but it didn’t.  She also had the g tube clamped almost the whole day, yay!!!  Things are going really well & now Ty is going more & more stir crazy!  He doesn’t do well sitting around watching movies.  Things will get better when Tyson comes & Chelsea is coming later.  We are already planning all kinds of fun things to go see & do.  The RMH gets tickets to fun places a lot too so maybe we will be able to get some of those.